By Kim Painter
Music has an unmatched power to bring back our pasts. But what if our memories have been lost to Alzheimer's or some other condition? Can music still work its magic?
A new film, Alive Inside, says yes. The film, opening Friday in New York, features the work of Dan Cohen, a New York social worker who started taking personalized iPods to people with dementia in nursing homes several years ago. Cohen's non-profit Music & Memory got a huge boost in 2012 when an early clip from the film, featuring a gentleman named Henry, became an online sensation. It has been viewed more than 10 million times at various websites, filmmaker Michael Rossato-Bennett says.
In the clip, Henry, then 94, is shown slumped and unresponsive in a wheelchair – until a nursing home worker places a set of headphones over his ears. Henry comes alive. He scats along with Cab Calloway and sings a soulful I'll Be Home for Christmas. The music "gives me the feeling of love, romance," he says.
Henry has since passed away, but that clip is one big reason that the Music & Memory program is in 640 nursing homes and assisted-living facilities, Cohen says. He says he won't be satisfied until personalized iPods – loaded with music especially chosen for each participant – are in all 16,000 U.S. nursing homes, available to all 1.6 million residents.
"Ninety-nine percent of these people are still sitting around and doing nothing all day when they could be rocking to their music," he says.
The reasons for Cohen's passion become clear in what Rossato-Bennett dubs "the only good-news film ever made about Alzheimer's." In segment after segment, people with Alzheimer's and other conditions don the headphones, hear the music of their youths and light up. A World War II veteran named John dances in his chair as the Andrews Sisters sing Oh Johnny, Oh Johnny, Oh! Another man holds his wife's hands and sings a duet of Can't Take My Eyes Off of You. An agitated woman becomes serene as she dances to strains of Schubert.
Such scenes are interspersed with comments from doctors, including the neurologist Oliver Sacks, who says, "Music has more ability to activate more parts of the brain than any other stimulus." Others talk about the need to reconnect with lonely, inactive and neglected elders, in and out of nursing homes.
Viewers might come away with the idea that a skillfully loaded iPod is a proven and universally effective cure for all that. In fact, the first big study of Music & Memory is just getting underway in Wisconsin, as part of a state-funded rollout in 200 nursing homes. Researchers will look at whether the approach improves social engagement and reduces agitation, anxiety and depression, say University of Wisconsin-Milwaukee researchers Jung Kwak and Michael Brondino. The study won't focus on memory but will look at overall effects on dementia, Brondino says. One thing they know, he says, is that staffs and patients "absolutely love this program."
The program, which relies on families and aides to work with patients, should not be confused with formal music therapy delivered by professionals trained in that discipline, says Alicia Clair, professor of music education and therapy at the University of Kansas.
Still, she says, "it's a wonderful thing" for many people. Caregivers need to know, she says, that not everyone will respond and that some people can even respond negatively. A song that stirs up sadness or anger might do more harm than good, she says.
Cohen says, "This is not a cure for Alzheimer's, and this does not work for everybody." But, he says, it is something just about anyone can try – something that might open up a whole lost world.
Cohen's tips for setting up an individualized music program and for donating used iPods to the program are at musicandmemory.org.
Alive Inside will open in theaters and be shown in film festivals around the country through mid-September.