3 Young Siblings Face Rare Disease That Makes Food Deadly

FriskFamily resized 600

For three young siblings, eating is a life or death proposition, thanks to a rare white blood cell disease, reported KSL.

The Frisk children— Jaxen, age 9; Tieler, age 7; Boston, age 4— have spent weeks in the hospital and are allergic to pets, pollens and multiple foods. The siblings all have eosinophilic gastrointestinal disorder (EGID), an abnormal build-up of eosinophil white blood cells in their GI tracts that can cause inflammation and tissue damage in response to foods and allergens. While the disease is relatively rare, it has increased in prevalence over the past decade affecting one in 2,000 people, according to the American Partnership for Eosinophilic Disorders.

"You need food to survive. But it is also what can kill you in our house," their mother, Jenny Frisk, told KSL.

When they’re exposed to their triggers, the children could have an anaphylactic reaction— potentially fatal allergic symptoms throughout the body.

"Tieler had one sip of milk when she was 1-year-old, and instantly started projectile vomiting and got hives all over her body," her father, Gary, told KSL. "It's a life and death situation at birthday parties, or religious events, or anywhere we go, because food is such a big part of our culture."

Between the three children, they’ve endured 11 surgeries and eight extended hospital stays, with more expected in the future.

On top of the children’s health issues, Gary battled cancer two years ago and Jenny had to have several surgeries due to serious adrenal insufficiencies that were unrelated to EGID.

The family has been bankrupted twice by medical bills. While they make too much income to qualify for help, they don’t make enough to pay for their children’s medical needs. Friends and family have started a GoFundMe account to raise money to pay for genetic testing and treatment.

"When we're looking at an illness that is not curable, and the treatment isn't covered (by insurance), the light at the end of the tunnel is really far away," Jenny said.

Source: http://www.foxnews.com

Recent Posts

The Crucial Importance of Diversity in the Nursing Field
In the constantly changing landscape of healthcare, Nurses play a vital role as the cornerstone of healthcare systems. They offer essential care, support, and education to patients. It is crucial for...
Read More
Nursing Hacks: Tips and Tricks to Make Your Shift Easier
Nursing is a rewarding yet challenging profession. Long hours, demanding tasks, and the need to stay organized can make shifts overwhelming. To help you navigate your day more efficiently, here are...
Read More
The Power of Age Diversity in Healthcare
In the ever-evolving world of healthcare, embracing diversity in all its forms is essential for providing exceptional patient care and cultivating a lively workplace. Age diversity, in particular,...
Read More

Subscribe to Email Our Newsletter

Education_Award_Square