DiversityNursing Blog

As Nurses, we witness the incredible resilience and unique journeys of individuals every single day. July marks an important occasion: Disability Pride Month.

Disability Pride isn't about denying the challenges that can come with living with a disability. Instead, it's about embracing disability as a natural and valuable aspect of human diversity. It's about dismantling stigma, fighting for accessibility, and recognizing the immense contributions of disabled individuals to society.

The History: A Look Back

Did you know that Disability Pride Month is celebrated in July to commemorate a monumental civil rights victory? The Americans with Disabilities Act (ADA) was signed into law on July 26, 1990. This landmark legislation prohibits discrimination against individuals with disabilities in all areas of public life, from employment to transportation and public accommodations. The first official Disability Pride Month celebration occurred in July 2015, marking the ADA's 25th anniversary.

Beyond legislation, the disability rights movement has a rich history of advocacy. Events like the Capital Crawl in 1990, where disabled activists crawled up the steps of the U.S. Capitol, dramatically illustrated the inaccessibility faced by many and spurred the passage of the ADA. These acts of courage laid the groundwork for the pride we celebrate today.

More Than Just a Month: Key Facts About Disability

• Disability is diverse: It encompasses a vast spectrum of conditions, both visible and invisible, including physical disabilities, neurodiversity, mental health conditions, chronic illnesses, and sensory impairments.

• A global community: According to the World Health Organization, approximately 16% of the world's population, or an estimated 1.3 billion people, live with a disability, making it the largest minority group globally. In the U.S., over 61 million adults live with a disability (CDC).

• The Disability Pride Flag: Designed by Ann Magill, the current flag features a charcoal gray background representing mourning for victims of ableist violence and abuse. The diagonal band signifies cutting through barriers, and the five colors represent different types of disabilities: Red (physical), Gold (neurodiversity), White (invisible and undiagnosed), Blue (emotional and psychiatric), and Green (sensory).

• Combating Ableism: Disability Pride actively challenges ableism – the discrimination and social prejudice against people with disabilities based on the belief that typical abilities are superior. It encourages us to shift from a "medical model" that views disability as something to be "fixed" to a "social model" that recognizes societal barriers as the disabling factor.

Voices of Experience 

Patient Voices:

• "My disability isn't a limitation; it's a different way of experiencing the world. It has given me unique strengths and a perspective I wouldn't trade." – Maria, living with a spinal cord injury

• "For so long, I felt like I had to hide my invisible illness. Disability Pride Month reminds me that my experiences are valid and that I deserve to be seen and celebrated for who I am, chronic pain and all." – Damian, living with fibromyalgia

• "When people focus on my wheelchair, they miss me. This month is about showing the world that disabled lives are full, vibrant, and deserve respect." – Sarah, a proud advocate and artist

Nurse Reflections:

• "As a Nurse, Disability Pride Month is a powerful reminder to always listen, to advocate for accessibility in our healthcare systems, and to see the person, not just the diagnosis. Every patient teaches me something new about resilience and adaptation." – Emily, RN

• "It's about shifting our mindset. We're here to empower, to support independence, and to make sure our patients receive equitable and dignified care. Celebrating Disability Pride is an extension of that commitment." – Michael, BSN

• "Disability isn't a tragedy; it's a characteristic. This month challenges us to examine our own biases and focus on creating truly inclusive environments for both our patients and our colleagues." – Jessi, Charge Nurse

How Can We All Celebrate?

Beyond July, the spirit of Disability Pride should inform our actions every day:

• Educate yourself: Learn about disability history, culture, and current issues.

• Challenge ableism: Be mindful of language, stereotypes, and unconscious biases.

• Advocate for accessibility: Support initiatives that promote universal design and inclusion in all areas of life.

• Amplify disabled voices: Listen to and uplift the experiences of people with disabilities.

• Celebrate diversity: Recognize and value the unique perspectives and contributions that disabled individuals bring to our communities.

Disability Pride Month is a call to action, a celebration of identity, and a profound reminder that true strength lies in embracing all forms of human diversity. Let's stand together, Nurses and allies, to create a world where every person, regardless of ability, is seen, valued, and empowered to thrive.

Disability affects approximate 61 million, or nearly 1 in 4 (26%) of people in the United States. Including people with disabilities in everyday activities and creating accessible environments and equitable opportunities that support them in holding roles similar to their peers who do not have a disability is disability inclusion.

Disability inclusion entails identifying barriers that potentially impact people with disabilities to independently live and be fully engaged in their communities. Everyone can make a difference and play a part in addressing those barriers.

Nurses play a crucial role in creating more inclusive health care and providing high-quality care. Caring for disabled patients requires a compassionate and patient-centered approach.

Here are some best practices for Nurses to consider when caring for disabled patients:

Accessibility: Ensure that the environment is accessible and accommodates the needs of disabled patients. This includes providing ramps, handrails, and wide doorways for those with mobility impairments. Make sure medical equipment is accessible and that communication aids, such as hearing devices or visual aids, are readily available. Braille signs provide crucial information related to your medical facility for people with visual impairments, such as the location of your restrooms, exits, and more.

Develop a Personal Connection: Building a personal connection with your patients is essential for establishing trust and rapport. Take the time to get to know them as individuals, ask about their interests, hobbies, and goals. This not only helps create a positive and supportive environment but also enables Nurses to provide care that is tailored to their unique needs and preferences.

Foster Effective Communication: Effective communication is vital when caring for disabled patients. It is important to understand and respect their preferred method of communication, whether it is verbal, non-verbal, or through assistive devices. Take the time to listen attentively, use clear and simple language, and allow them sufficient time to express themselves. If needed, collaborate with speech therapists or communication specialists to enhance communication capabilities.

Promote Independence and Autonomy: Patients with disabilities often face challenges in performing daily activities. As a Nurse, it is important to promote independence and autonomy by encouraging patients to participate in their care and decision-making processes. Involve them in setting goals, planning their care, and making choices whenever possible. This fosters a sense of empowerment and enhances their overall well-being.

Address Physical and Emotional Needs: Disabled patients may experience physical and emotional challenges due to their condition. It is crucial for Nurses to address both aspects of their well-being. This includes providing appropriate pain management strategies, managing symptoms effectively, and promoting comfort and mobility. Additionally, Nurses should offer emotional support by actively listening, showing empathy, and providing resources for counseling or therapy if needed.

Collaborate with a Multidisciplinary Team: Caring for disabled patients often requires a multidisciplinary approach. Nurses should collaborate with other healthcare professionals, such as Occupational Therapists, Physical Therapists, Social Workers, and Psychologists, to provide comprehensive care. By working together, healthcare professionals can develop a holistic care plan that addresses the various aspects of a patient's well-being.

Stay Updated with Best Practices: The field of healthcare is constantly evolving, and it is essential for Nurses to stay updated with the latest best practices and evidence-based research. Continuous learning and professional development help Nurses enhance their knowledge and skills in caring for disabled patients. Attend workshops, conferences, and training sessions focused on disability care to stay informed about new techniques, technologies, and approaches.

Advocacy: Nurses can act as patient advocates by helping patients make informed or ethical decisions, translate medical terminology into common language, and navigate complex medical systems. Often, you are the closest healthcare provider to your patient. You can help protect their rights, health, and safety by upholding patient equality, making patients a priority, and being a reliable resource.

In conclusion, caring for disabled patients requires a compassionate and patient-centered approach. By implementing these best practices, Nurses can provide optimal care, promote independence, and improve overall well-being. Remember, each patient is unique, and providing person-centered care requires flexibility, empathy, and a willingness to adapt your approach to meet individual needs.